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Rare Disease Day
Results: 254

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131	The LINK Canadian Organization for Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2009-04-01 16:11:55 Canadian Organization for Rare Disorders Morquio syndrome Orphan drug Lysosomal storage disease European Organization for Rare Diseases Fabry disease Rare Disease Day Glycogen storage disease type II Mental disorder Health Medicine Rare diseases
132	FOUNDATION Mucolipidosis IV Foundation may they grow in their sweet way / and blossom more every day / and follow the music in their soul / may there be time for them to grow VOLUME V, NO. 1 ML4 Foundation begins Fundi Add to Reading List Source URL: www.ml4.org Language: English* - Date: 2011-11-17 22:12:35 Rare diseases Medical genetics Channelopathy Mucolipidosis type IV MCOLN1 Medical genetics of Jewish people Tay–Sachs disease National Institutes of Health Familial dysautonomia Health Medicine Lipid storage disorders
133	EGRD 2nd Meeting – Summary Report Commission Expert Group on Rare Diseases 2nd Meeting, 3-4 July 2014, Luxembourg Short Report Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2014-09-19 11:27:31 Rare disease Rare Disease Day Disease registry Orphanet Medicine Health Epidemiology
134	European organisation for rare diseases Activity Report 2012 & WORKPLAN 2013 Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2013-05-28 11:03:00 Rare Disease Day Medicine Rare disease Orphan drug European Medicines Agency Orphanet Canadian Organization for Rare Disorders Greek Alliance of Rare Diseases Health Science European Organization for Rare Diseases
135	News from Nord An update for our members and friends SUMMER[removed]NORD Hails FDA Safety Add to Reading List Source URL: rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Food and Drug Administration Pharmacology Pharmaceuticals policy Epidemiology Drug discovery Rare Disease Day Rare disease Prescription Drug User Fee Act National Organization for Rare Disorders Health Medicine Pharmaceutical sciences
136	Microsoft Word - Princeps document-EN.doc Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2012-02-20 08:19:30 Medicine European Organization for Rare Diseases Rare diseases Orphan drug Orphanet Disease Rare Disease Day Greek Alliance of Rare Diseases Health Epidemiology Science
137	Lettre_AFM31- fevrier07.qxp Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2012-02-20 08:19:30 European Organization for Rare Diseases Pharmaceuticals policy Rare disease Orphan drug Orphan Drug Act European Medicines Agency Pharmaceutical industry Greek Alliance of Rare Diseases Rare Disease Day Health Pharmaceutical sciences Pharmacology
138	News from Nord An update for our members and friends Fall[removed]Alone We Are Add to Reading List Source URL: rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Pharmaceutical sciences Drug discovery Pharmacology Rare Disease Day European Organization for Rare Diseases Rare disease Prescription Drug User Fee Act Orphan drug National Organization for Rare Disorders Health Medicine Pharmaceuticals policy
139	EURORDIS Position Paper on Specialised Services for People Living with Rare Diseases Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2009-08-29 11:21:46 Caregiver Health Science Medicine Rare Disease Day Genetic Alliance UK Epidemiology Rare disease European Organization for Rare Diseases
140	News from Nord An update for our members and friends Join Us in Celebrating the 30th Anniversary of NORD and the Add to Reading List Source URL: rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Rare Disease Day Rare disease European Organization for Rare Diseases National Organization for Rare Disorders Pharmacology Orphan drug Orphan Drug Act Genzyme Food and Drug Administration Health Medicine Pharmaceutical sciences

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